女孩患罕見“蓬發(fā)綜合征” 發(fā)型狂放不羈 酷似愛因斯坦

澳大利亞7歲的小女孩茜拉患有罕見的蓬發(fā)綜合征，這讓她看起來就像是“小愛因斯坦”。她的爆炸頭總是能吸引別人的目光，而茜拉說，她喜歡自己獨(dú)特的頭發(fā)，因?yàn)?ldquo;這不像別人的頭發(fā)那么無聊普通”。

Meet an adorable girl, with an extremely rare condition that makes her hair as wild as Albert Einstein .

來認(rèn)識(shí)一下這個(gè)可愛的小女孩吧，她患有一種極其罕見的疾病，讓她的頭發(fā)看起來像阿爾伯特•愛因斯坦一樣狂野。

Shilah Calvert-Yin's incredible bouffant 'do' is caused by a condition known as Uncombable Hair Syndrome - which is believed to impact just 100 people around the world.

這位名叫茜拉•卡爾弗特•因的小女孩因?yàn)榕畎l(fā)綜合征而擁有這樣不可思議的蓬松發(fā)型，據(jù)信全世界僅有100人患有這種蓬發(fā)綜合征。

Despite being compared to the famous physicist and getting a lot of attention from people in the street, Shilah, seven, said she loves her unique hair because "it's not boring like everyone else's."

盡管被拿來和大名鼎鼎的物理學(xué)家作比較，并且吸引了很多路人的目光，7歲的茜拉仍表示非常喜愛自己獨(dú)特的頭發(fā)，因?yàn)?ldquo;看起來不像其他人的發(fā)型一樣乏味。”

In the past she has been compared to Doc Brown from Back To The Future , but Shilah doesn't mind, as it is one of her family's favourite movies.

以前她還被人比作電影《回到未來》里的布朗博士，但是她毫不在意，因?yàn)檫@是她的家人最愛的電影之一。

Shilah, from Melbourne, Australia said: "It's not ordinary and it's not boring like everyone else's.

來自澳大利亞墨爾本的茜拉說：“我的發(fā)型不像其他人的一樣平凡乏味。”

"Everyone knows me and remembers me - especially at school. All the grade levels know who I am.

“每個(gè)人都認(rèn)識(shí)我并且能記住我，尤其是在學(xué)校的時(shí)候。所有年級(jí)的學(xué)生都認(rèn)識(shí)我。

"I think my friends wish they had hair like mine."

“我覺得我的朋友也希望擁有像我一樣的頭發(fā)。”

The family had no idea about Shilah's condition until about nine months ago, when a doctor informed them of UHS.

全家人一直不知道茜拉得的頭發(fā)是什么引起的，直到9個(gè)月前一位醫(yī)生告訴他們這是蓬發(fā)綜合征。

When explaining to others, Celeste said, people usually think it's a joke, or are completely intrigued by the condition and end up googling it.

塞萊斯特說，當(dāng)她向其他人解釋時(shí)，人們通常會(huì)覺得她是在開玩笑，或者感到非常好奇，然后去上網(wǎng)搜索。

The syndrome is caused by a mutation to one of three genes - PADI3, TGM3 and TCHH - and though there is no cure, it is believed to become more manageable with age.

PADI3、TGM3 和TCHH這3種基因中任何1種產(chǎn)生突變，就會(huì)導(dǎo)致這種癥狀。盡管現(xiàn)在沒有治愈的方法，但是隨著年齡的增長，頭發(fā)將會(huì)變得可控。

In order to show off her fine hair, Shilah and her family also created an Instagram account, so that others could also learn from how the condition changes with age.

為了展示茜拉漂亮的頭發(fā)，茜拉和家人還開通了Instagram賬號(hào)，這樣其他人也能得知隨著年齡的增長這種癥狀會(huì)發(fā)生什么變化。

The youngster has also tried her hand at modelling - something her family hope will show the positive side of embracing such a condition.

茜拉還嘗試去做兒童模特，她的家人希望借此表現(xiàn)出她接納這種發(fā)型的積極的一面。

Celeste said: "Shilah draws attention everywhere she goes and always has since her hair grew through at about three months old.

塞萊斯特說：“茜拉無論走到哪里都會(huì)引人注目，她大約3個(gè)月大開始長出頭發(fā)后，就一直如此。

"Her older brother, Taelan, has been a fantastic support when other children make comments towards her or even touch her.

“當(dāng)其他孩子們對她評頭論足甚至用手摸她頭發(fā)時(shí)，她的哥哥泰蘭總會(huì)挺身而出。

"Having said that, adults can be just as juvenile and say some of the most random things or take photos of her and even touch her hair.

“話雖如此，但一些成年人還是會(huì)像不懂事的孩子一樣胡說八道、對著她拍照片甚至摸她的頭發(fā)。

"Shilah is used to all the attention and has begun to manipulate and work situations in her favor.

“茜拉已經(jīng)習(xí)慣了這種關(guān)注，并且開始學(xué)會(huì)如何掌控和處理這種情況，不會(huì)讓自己吃虧。”

"Hence why we decided that modelling will embrace her unique look and she has the personality and attitude to pull it off."

“因此，我們認(rèn)為她獨(dú)特的外貌適合模特職業(yè)，而且她的個(gè)性和態(tài)度能讓她做好這份工作。”