雙語(yǔ)：美國(guó)女孩患早衰癥貌似老人 故事勵(lì)志感人！

Despite suffering from an extremely rare ageing condition, self-confessed "diva" and YouTube star Adalia Rose has racked up more than 170 million views for her bubbly personality and inspiring content.

阿達(dá)利婭.羅斯盡管患有一種極其罕見(jiàn)的衰老病癥，但憑借活潑開(kāi)朗的性格和勵(lì)志的故事，她的YouTube賬號(hào)已經(jīng)有了1.7億多的瀏覽量,她自認(rèn)為自己是“天后”

The 11-year-old internet sensation was diagnosed with Hutchinson-Gilford progeria syndrome (a genetic condition which affects less than 500 children around the world) as a baby... but has not let it stop her from documenting her fun-filled life online.

這位11歲的網(wǎng)絡(luò)紅人在嬰兒時(shí)期就被診斷出患有哈欽森-吉爾福德早衰癥(患有該遺傳病的兒童全世界不到500名)。但盡管如此，她已然繼續(xù)在網(wǎng)上記錄自己充滿樂(lè)趣的生活。

Famous for her beauty tutorials and vlogs, the American pre-teen often shares her day-to-day experience with the rare condition with her 1.5 million YouTube subscribers.

這位美國(guó)少女以她的美容教程和視頻博客而聞名，她經(jīng)常和自己的150萬(wàn)YouTube粉絲分享她的日常生活。

Along with rapid premature ageing, Adalia has also suffered from hair loss, lack of body fat, prominent veins, a high pitched voice and severe stiffness in her joints.

伴隨著快速的早衰，阿達(dá)利婭開(kāi)始遭受脫發(fā)、體脂不足、靜脈突出、音調(diào)高亢和關(guān)節(jié)僵硬帶來(lái)的的痛苦。

First diagnosed at just three months old, Adalia’s mother Natalia Pallante, 29, said doctors first noticed something was wrong within the first four weeks of the little girl’s life.

阿達(dá)利婭的母親娜塔莉亞.帕蘭特現(xiàn)年29歲，她說(shuō)，阿達(dá)利婭在3個(gè)月大的時(shí)候就被確診了。醫(yī)生們?cè)谒錾蟮乃闹軆?nèi)就發(fā)現(xiàn)了不對(duì)勁。

Concerned about Adalia’s lack of "growth", the then single mum also recalls how the "skin on her tummy was really tight and just different looking."

考慮到阿達(dá)利婭沒(méi)有“發(fā)育”，當(dāng)時(shí)還是單身的母親回憶說(shuō)，“她肚子上的皮膚的確很緊，但就是看起來(lái)不大正常。”

Two months later, Natalia was left devastated by the life-changing diagnosis and remembers how "it was just her and I and I honestly felt lost."

兩個(gè)月后，娜塔莉亞被這個(gè)改變?nèi)松脑\斷弄得心力交瘁，她還記得“當(dāng)時(shí)只有她和我，我真的感到非常失落。”

It was also around this time that Adalia "started losing her hair and her little veins started showing up more and her skin started thinning out a lot more."

也正是在那個(gè)時(shí)候，阿達(dá)利婭“開(kāi)始脫發(fā)，她的小血管開(kāi)始增多，皮膚也開(kāi)始變薄。”

Sufferers of this extremely rare condition (caused by a abnormal gene protein) are also at an increased risk of dwarfism.

患有這種極其罕見(jiàn)的疾病(由異常的基因蛋白引起)的人患侏儒癥的風(fēng)險(xiǎn)也比正常人高。

However in the 11 years since that life-changing moment, Adalia and her family (who are based in Texas) instead choose to live "day by day" and don’t discuss the condition’s 13 year life expectancy.

然而，在被確診11年后，阿黛麗婭和她的家人(住在德克薩斯州)決定活在當(dāng)下，就算自己最多只能活13歲，她們也決定不再考慮這個(gè)問(wèn)題了。

Now an older sister to three little brothers, Adalia styles out her lack of natural hair with her signature colourful wigs.

阿黛麗婭現(xiàn)在是三個(gè)弟弟的姐姐，由于沒(méi)有長(zhǎng)頭發(fā)，她戴著標(biāo)志性的彩色假發(fā)，而且梳得很有型。

And like any other social media obsessed pre-teen, Adalia and her mother first created her channel in 2012 for "giggles"... and have been amazed by the response they’re received.

和其他喜歡社交媒體的青少年一樣，阿黛麗婭和她的母親在2012年創(chuàng)建了她的“咯咯笑”頻道……收到的回復(fù)量令她們感到驚訝。

From colourful make-up looks to videos showcasing her singing, Adalia has acquired a devoted fanbase of 1.5 million subscribers who are always telling her that she is "so cute" and "so beautiful".

阿黛麗婭已經(jīng)擁有150萬(wàn)忠實(shí)粉絲，從色彩斑斕的妝容到演唱視頻，她的視頻內(nèi)容日益豐富，粉絲紛紛評(píng)論“太可愛(ài)了”、“太漂亮了”。

What’s more, Adalia’s channel has racked up over 170 MILLION views in the past six years with her most popular videos being her dance routines and make-up tutorials with her mum.

更重要的是，阿黛麗婭的頻道在過(guò)去六年里瀏覽量超過(guò)1.7億，最火的是她的舞蹈動(dòng)作和她媽媽的化妝教程。

Reflecting on her online fame, Adalia said: "I guess I am a diva because I always get what I want!"

談到她在網(wǎng)上的名氣時(shí)，阿黛麗婭說(shuō):“我覺(jué)得我是一個(gè)天后，因?yàn)槲铱偰艿玫轿蚁胍?”

Natalia also agrees and describes how her only daughter has both her parents "wrapped around her little finger."

娜塔莉亞也同意她的說(shuō)法，并描述了父母是如何“被小女兒的光環(huán)折服”的。

Adalia’s stepfather Ryan, 31, said: "Having a social media superstar 11-year-old, it’s crazy, especially when we are out in public - you know, a lot of people recognise her."

阿黛麗婭的繼父萊恩今年31歲，他說(shuō):“作為一個(gè)11歲的社交媒體巨星，這太瘋狂了，尤其是當(dāng)我們?cè)诠矆?chǎng)合的時(shí)候——你懂得，很多人都認(rèn)識(shí)她。”

And according to the online star’s mother, Adalia is also constantly complimented on her videos and praised for "how she’s inspirational and how she doesn’t let anything stop her."

據(jù)這位網(wǎng)絡(luò)明星的母親說(shuō)，因?yàn)橐曨l阿黛麗婭受到的稱贊也絡(luò)繹不絕，她說(shuō):“她是那么鼓舞人心，不愿讓任何事情阻止自己。”

Finding strength in her loyal fanbase, it’ll come as no surprise that Adalia "loves those comments" on her videos.

能在忠實(shí)的粉絲群中找到力量，阿黛利婭“喜歡那些評(píng)論”也就不足為奇了。